Miracle Story: Carly (Progeria)

Published 2019-11-20
Carly's mantra is "Tiny but Awesome," and it's true in everything she does. While Carly leads the life of a typical second grader, participating in girl scouts, learning tap and jazz, excelling in math, and becoming fiercely independent, that's where Carly's "typical" ends.

She is just one of 17 kids living with progeria in the US. Progeria is an extremely rare genetic condition that causes her to age eight to 10 years each year. Children with progeria have small stature, shorter life spans and experience heart disease and stroke along with other conditions typically associated with the average aging public, occurring as early as 6 versus 70 or 80 years of age.

Donations allow Carly’s caretakers to collaborate with global experts on progeria and help pay for diagnostic equipment.

Carly loves DIY and crafting, YouTube videos, making slime, Curious George, traveling, dolls, playing school and cooking. Carly's latest obsession is LOL Surprise dolls — collecting them, watching YouTubers unwrap them in videos, playing with them and making videos herself!
________________________________________
About Miracle Network Dance Marathon:
Miracle Network Dance Marathon is an international movement, involving over 400 colleges, universities and K-12 schools across North America that fundraise for their local Children’s Miracle Network Hospitals. Since its inception in 1991, Miracle Network Dance Marathon has raised more than $300 million, ensuring that no child or family fights pediatric illness or injury alone. For more information about Miracle Network Dance Marathon, visit dancemarathon.childrensmiraclenetworkhospitals.org….

Follow Us:
Facebook – www.facebook.com/CMNHospitalsDM/
Instagram – www.instagram.com/dancemarathon/
YouTube -- tinyurl.com/dancemarathonsubscribe

#DanceMarathon #ChildrensHospitals #Students #Leadership

All Comments (21)