Alison's story | Huntington's in mind

Alison You are a wonderful wife mother and carer.be kind to yourself you are carrying a huge load.much love and prayers.💕

It's heartbreaking quite honestly. No one deserves to go through this it's not right.

Praying for you Alison God bless you abundantly

You are a blessing to Bert and Elise

Im sorry, Alison. I wish I could give you a hug. Praying for you 🙏 ❤️

Hi Allison,please i want you to know ,Ive lived your pain,cried those tears.My husband passed in 2019 age 60 from HD.His journey was our journey too.When God chose them for us.He knew he made the right choice.Omg! havent cried like that in a bit, felt so good.Thank you for sharing your family with us.HUGS .

I am truly sorry about your husband and daughter. Never feel alone. There are many many people with HD. It's okay for you to cry. Thank you for your story.

I’m currently my husband’s caregiver because of Huntington’s. It’s tough, but I want him to be as safe, happy, and healthy as possible for as long as possible. It’s a horrific disease.

Thank you for telling your story , as heartbreaking as it is - I admire your courage and attitude , I know it can't be easy . Hopefully , with more public awareness of this disease , the road to a cure will come quicker .

Lovely Lady,dear Allison What a caring,compassionate person you are Warm Hugs from Amman Jordan 🇯🇴 The Middle East

May god be with all those with Huntington’s Disease.

This is so heartbreaking for you Alison. Your beautiful caring nature shines through . Your husband and daughter are so lovely. You are sharing precious times. Bless you all

Alison, there are no words to say about this challenge in your life and the great loss. God bless you always.

Just came across this video, since there are not very many new videos that are less than a year old. My father-in-law had HD and both brother-in-law‘s had HD and now my niece has it and she’s 28 my husband is 61 It does not have any symptoms, so we’re just praying that God has chosen not to be caregivers. After watching my mother-in-law go through taking care of her husband with HD for eight years now we’re doing the same thing. It’s the cruelest coolest disease out there. I wish more people know about Huntington’s disease. God bless you for making this video.❤😢

Alison, I am crying with you. You are a wonderful person. You have way too much on your plate. I wish I could help you.

I've been diagnosed with it.its untreatable

What a lovely, lovely woman! She does know what it is to live with Huntington's disease. She has a double dose of it, and although she doesn't have the physical symptoms, she has to live with and manage the symptoms of two of the people she loves most in the world. It is tragic that people and families hid the disease from their spouses. Huntingtons and other neurological diseases (like ALS) are maddening. There are always research articles proclaiming that we are on the cusp of a cure, or at least a viable treatment. I get very excited. Victims of the disease and their families are ecstatic--until you realize that they have been saying the same thing for decades. These families need our support and encouragement. We need to stop funding ridiculous pet projects like " bus stops complete with Wi-Fi, heated benches and sidewalks, and a steel-frame roof" or the "Popular Romance Project," or "he National Institutes of Health spent more than $300,000 on a University of California, Berkeley, study that proved something no one was questioning—couples are happier when the woman calms down after an argument." Start looking at the other outrageous things, on which our tax dollars are squandered! That money needs to be spent on research and testing for cures, and for pre-IVF testing for people who have these genetic diseases. We owe it to them. We owe it to the yet unborn children who will be afflicted with these diseases. We owe it to the people who love them.

🙏🙏🙏❤️. I love your perspective and serene energy.

I hope you have the support you need I nursed my Dad through Alzheimers and my mum just six months after my Dad passed with terminal cancer. There are 4 of us kids but I was the main one funny really 2 had early retirements but I was working and providing care with careers I was exhausted and in the 6mnth period lost 3 stone I was little anyway so i looked terrible When my mum died I was ashamed If felt peace You should never be soul carer you stop being you Im so sorry this happened to your family My sister now has breast cancer and im waiting to see if I have it too strange coincidence If I do but I won't let loved ones take the strain I will go to hospice if that time comes don't lose sight of yourself your a wife and a mum first. x

All the best, Alison. Thanks for making this video and sharing your story. xxx