My Dad is Dead - The Sick TRUTH of Glioblastoma (Brain Cancer)

As a hospice nurse I have to say what a beautiful son you are. Your story is so emotionally filled with truth. I'm sure you were a hero in his eyes.

Every lawmaker in the US should be required to listen to your story and 10 more just like it and then write an detailed explanation why they think physician assisted death should not be legalized.

I'm so sorry for all you have gone through. I nursed my husband on home hospice, mostly alone, and my once 6'4, athletic, bicyclist, camper, hiker - lean, fit sweetheart became a diaper wearing, emancipated-looking, steroid moon-faced man I hardly knew. Bed bound and 95% mute. It's sadly, it's all something that has to be "lived" to be "understood" - I believe. NOTHING could have prepared me for watching my husband actively die over MONTHS. And I had been a nurse, so I'd been exposed to a lot. I'm just so sorry to my core, for anyone going through this. xxx

I'm sure your dad was proud of you. He raised a good, selfless man. You must get it from him. Imagine knowing you have a very limited time, and yet you spend hours of that time picking out the perfect gift out of love. That's touching and brings tears to my eyes. God bless you and your family.

My Dad passed 2 days ago with this. He was smiling as I spoke to him 12 hours before. He still recognised my voice😢 Saddest day of my life so far.😢😢

I'm sorry for the loss of your father. Glioblastoma is a horrible disease. My late husband had it. He lasted 14 months from diagnosis to his death. The cancer didn't ultimately cause his death, he had a pulmonary embolism while in orthopedic rehab. At the time, he was preparing for a 3rd surgery and was on Avastin. You did everything you could to help your father through his last days. That's all anyone could ask. I did the best I could and I have no regrets. The last thing I ever said to him was on the phone the night before he died. I said "See you tomorrow. I love you." and he said. "I love you too."

I’m SO glad he let you know how much he loves you before he died ❤

My brother has this and is not doing well. Diagnosed in October 23….I wouldn’t wish this on my enemy. He decided no chemo or surgery. For the families that have to deal with this, just be patient with love. We have hospice already in January/Febuary. I’m hoping to go fishing 1 more time. Just love.

My grandfather died from glioblastoma. He lived 6 months from diagnosis to death. He had radiation, and had surgery. After surgery he was never the same, and this was early on. He died at home. There was no hospice back then so we took care of him in a hospital bed. Bless you.

You were an incredible caregiver. INCREDIBLE. I took care of my dad in his final year and found out that I could wipe his hiney without flinching, because he needed it. I miss him terribly. I feel that disconnect too. My dad was a mayor of our town, very dignified. No one knows all of what I did. I was holding his hands when he left this world. Fortunately he never suffered cancer. He was 97 and lived a wonderful life. Your dad had a marvelous son. Thank you for the education of us. (I asked my father if there was something he wanted to tell me, he nodded, and I said what? He whispered I"I love you.")

My dad died from brain cancer when I was 14 and he was 39 yrs old. I dropped out of school to take care of him. He was given 6mo-2yrs to live after they tried to remove his tumor. Towards the end of his life 18months later, he did not know who I was and only one side of his body kind of worked . It was too much for a kid. Having bite sticks taped on the walls everywhere, so I could grab and stick it in his mouth when seizures happened. One seizure he had, I went flying through the closet door and dislocated my shoulder. Hospice nurse came and she was changing his catheter. She got it stuck in wrong and he was crying out in pain. I was home and I called the ambulance. They came and took my dad and the hospice nurse to the hospital. I was told that they would be back in a little while. My dad died that day at the hospital. The hospice nurse had given him double the dose of morphine that he normally takes when she was trying to fix the catheter. At the hospital, they gave him a shot of morphine. He died of an OD.

I am here because my brother has 3 glioblastoma tumors and I want to know what to expect. He was diagnosed in April 2023, 8 months ago. He was told 2-4 months without treatment, and 12-14 with. He went through chemo, 32 days of radiation, more chemo with Optune device, and now Avastin infusions. His memory is somewhat going, along with peripheral vision. Recently, his scans showed significant improvement. He is still working from home and enjoying family, friends, and some travel. We are told that he will likely have life-changing seizures soon, and to say our goodbyes now while he can respond normally as himself. Our parents, his wife, his kids, my husband and kids, ugh this is so sad. Thanks for sharing this information.

What a terrible end for your dad. He deserved so much better—most everyone does. But you and your family did everything you could to help him. That’s love. 😢

My dad seized in February 1976 and died that April of a GBM. I was 11 when he seized. I remember the hiccups. He tried to laugh it off so I wouldn't be scared. They were very deep and loud. The last time I saw him he was in a wheelchair at the hospital and was all black and blue from the radiation. This video helped, even after all this time, thank you.

I so appreciate your honesty. I am a nurse and always say caregiving is the hardest thing a family member can do for a loved one. It is exhausting emotionalIy, spiritually and physically. You are a very good son. I am so sorry for your loss.❤

You are a wonderful son. You should be proud of yourself.

My 13 year old nephew just died from diffuse midline glioma. Brain cancer, all cancer, is heart breaking and dreadful. I'm so sorry for your loss

Hi AJ, thank you for sharing your story. My husband died of glioblastoma eight months ago. Whatever you went through I did, but I was the sole caregiver for a long time. Luckily, I had two full-time nurses during his last 4 months and they were amazing. My mother-in-law also helped to care for my husband in his last months. I just want to let you know that for the very first time since my husband's death, I feel somebody completely understands what I went through. You are so articulate, you narrated the journey so well. Thank you! Please know that I am thinking about you and praying that you stay strong.

My dad's in his last days or hours of this same illness too. A lot of your father's journey is almost exactly like my dad's right now. As of writing this, he's still just snoring in a deep sleep. He first seized in July, confirmed diagnosis in September, and now it's here. We know it's almost time. Thank you for sharing this story about your father. He sounds wonderful. I'm so sorry for your loss.

my father died in 1999 of this. he was diagnosed in feb and died in october. in between he had radiation, chemo and surgeries. in and out of hospital. he swelled up like a toad, didn’t even look like himself. towards the end, he would get so frustrated bc he wanted to form thoughts or simple math and couldn’t. i have empathy for anyone who has experienced this whether personal or family caretaker. God bless.