Rare Genetic Disorder Turns Muscle Into Bone: The Human Mannequin | Only Human

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Published 2023-01-17
Teenager Louise Wedderburn has a rare genetic condition which is causing each of her joints to lock, as her muscle turns into bone. In spite of this she is determined to build a career in fashion. Will the notoriously image conscious fashion industry accept her, or will her extraordinary condition stand in her way?

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From: The Human Mannequin

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All Comments (21)
  • She has a natural eye for fashion. She can direct someone else to do the work from her vision. Someone give her a chance
  • @cornfed8409
    She’s aware of the lifespan associated with her medical condition. But her strong will and determination to use every single minute of her life constructively is so admirable. She is here to inspire us—so that when we feel we are at the lowest ebb in life, we have time to reflect that we shouldn’t underestimate the strength we all have in overcoming any challenges coming our way.
  • 3 generations of beautiful, strong women. I wish them all the best and I hope they find a cure soon!
  • @vondahe
    What a trooper. I know you don't have a choice but to deal with it, but I still find her attitude immensely inspiring!
  • What a frightening condition for anyone to have to live with 😢 She seems like such a sweety and she is gorgeous ❤️ I'm so glad she has such a supportive and loving family 🙏
  • Her face is stunning. It would be nice if a make-up company saw her and had her model make-up and hair products
  • I am French. This young lady is incredible. So charming ! I do not have the right words in English to express what I felt watching this. She is brave and brings joy. Elegance and intelligence. Bravo !
  • @HaggisVitae
    I visited the Mütter Museum (College of Physicians) in Philadelphia with my husband once and was complaining about my feet hurting as we’d been walking a lot that day. We got to the display of a skeleton of someone who died in his 40’s of this disease. I swore then and there never to complain about sore feet again. What pain must they endure. This young woman is just so brave and beautiful.
  • My sister has this disease. It's heartbreaking to see it in real life but they're all so brave
  • @MithrilMagic
    What a lovely young woman. She’s so determined and tenacious! I have no doubt that no matter what she chooses to do she’ll be a success. Especially with her family, they’re also amazing. I just feel so inspired by all of them! I’m sending love and light to them all!❤
  • Louise is such an inspiration to us all. She's not let her F.O.P. limit her from pursuing her life-long dream of being a part of the fashion world. I'm a chronic pain patient that has to battle with severe anxiety and depression. I feel so encouraged to live by her standards to never let my disability stop me from doing what I most enjoy in life anymore. The strength it took for her, knowing the pain she'd more than likely suffer from pushing herself brought me to tear's. Thank you for sharing your story with us, Louise. I truly wish you all the best!
  • She is so lovely!! I have RA and have the worst attitude about it. I need to be more like her. She is beautiful inside and out. ❤️
  • She can break the boundaries of what is expected of the fashion industry. She deserves the best. What an inspirational woman. 👏
  • @josi4251
    Louise is a true inspiration. I am going to hush up about my osteoarthritis. Watching her story, seeing her positive attitude, viewing how optimistic she is have all made me realize how lucky my life has been.
  • This young woman is so beautiful both inside & out. Even with everything she goes through she is determined to live out her life & experience all her dreams. She would make a fabulous stylist.
  • @Csio12
    Its horrific and its also painful. Ive seen it before. Why Dads run away from disabled kids shows how weak n selfish many men are. She is so brave to endure.
  • I'm speechless. I cried through most of this! the pain she must be in and to be so positive and brave to do the things and gone the places she has gone is just amazing. keep flying high you beautiful human. and such a attractive girl too x
  • This stunning young woman came out on the other side of this horrendous condition with a use for her love of fashion! How amazing!
  • @westzed23
    What a fine talented young woman Louise is. She has her own sense of style and takes ideas from what she sees in magazines but also on the street. During the two work placements she presented her ideas well and had them used. The people listened to what she had to say which is important in working at another business or with one's own employees. After her return to Scotland, Louise made a brave choice to start her own fashion and consulting site. As this allows her to work from home, I can see how she deals with her disability and running her business at her own pace as she has good days and bad. And what a wonderful family that supports her. I believe that Louise will be successful because of her talent and her determination, and she truly has fun at it. All the best of luck. A side note: I see that Louise looks a bit like Paris Hilton with her style and in the face.
  • I just love Louise Mom and Granny! How blessed are they to have her positivity around them. She is so strong in her personality and she is a great inspiration to so many teenagers who do not know what it is to long for a life without problems! You go Louise!