HDYou Community Stories - Vivir Con Ella

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Published 2024-03-20

We continue to share the many different experiences of the global community impacted by Huntington's disease. Javier Lafuente has been raising awareness about HD since his wife was diagnosed. He joined HDYO Ambassador Claudia to learn about what inspired him to create his blog and social media presence, Vivir Con Ella, and give his advice to young people impacted by HD.

This conversation is in Spanish with English subtitles. Multiple languages are offered on via closed captioning.

HDYou: Community Stories is sponsored by Roche, Sage Therapeutics, Teva Pharmaceutical, uniQure, Wave Life Sciences, The Griffin Foundation, and Neurocrine Biosciences.

All Comments (4)

@asociciacionvalencianaenfe9412 21 days ago

Javier, como ya sabes, siempre nos encanta escucharte. Vuestra familia sois un ejemplo a seguir y las familias afectadas por EH tienen mucha suerte de poder seguir vuestros consejos. Gracias por todo lo que hacéis
@masmicas 4 months ago

Muito obrigado pela informação.
@jeannettebrachthaeuser5914 4 months ago

Gracias por este aporte. Me siento completamente identificada en la situación de Javier. Cuide 12 años a mi esposo y no es facil encontrar información competente en diferentes idiomas fuera del ingles. Mucha fuerza y paciencia para todos los cuidadores. Con amor se puede todo ;) 😅