From Crohn’s Disease To Ostomy Bag! - Meghan | Inflammatory Bowel Disease | The Patient Story
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Published 2024-07-25
In this vlog, Meghan shares her story from the first symptoms through her diagnosis, the ups and downs of managing Crohn's, the emotional and physical impact of her ostomy surgery, and her eventual acceptance and advocacy for IBD awareness.
Thank you, Meghan, for sharing your story to help others.
#ibdawareness #irritablebowelsyndrome #patientstories #thepatientstory
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Chapters:
0:00 Meet Meghan
0:32 My first symptoms of IBD
2:23 My Crohn's disease diagnosis
4:58 Shocking call from my doctor
7:15 The conversation that change my life
10:07 What is an ostomy bag?
15:48 Being pregnant with IBD
18:45 You can live a fulfilling life with an ostomy bag
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All Comments (21)
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I am sure sharing your story will help many others realize it is not the end of the world, and they can still have a beautiful life with the bag. It sounds like you were fortunate to have massive support. That is so important when making a life changing decision.
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This almost same story happened to my daughter starting in High school. She has two children and lives a full life including swimming hiking and everything you can think of. The bag is really not visible to others. So worth it!!! Thank you for telling your story.
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Very inspiring. I told one of my family members life goes on and that they will be fine.
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My husband has had an ileostomy for 39 years. He loves life and it doesn’t slow him down! He’s truly an inspiration!! I hope anyone reading this who is terrified of having this procedure finds hope in his testimony.
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Thank you! What an encouraging message for anyone, with or without an ostomy. My female cousin had to have an ostomy due to Crohn’s disease when she was around 21. She married afterwards and had two children. Your video and you will help many people who watch it. Your family is lovely, as are you.
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So understand and resonate with your story!!! My Crohn’s started at 10 yrs old… was on several steriod based medications that eventually no longer worked as my disease progressed… My quality of life declined, with constant anaemia, fistulas, etc. that me to a making that big decision at age 32. But it changed my life… actually, the ileostomy gave me my life back!!!!! Now I’m almost 60 and do not regret my decision . 🙏❤️🙏
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Well done just been diagnosed at 53 I have IBD and it's murder
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What a beautiful, young lady in every way. It’s so important she’s sharing her journey on IG & taking the stigma away re: having an ostomy bag. Meghan truly has a wonderful spirit & her vivacity & joy made me smile. I wish her & her lovely family a lifetime of happiness! 💕
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I didn’t have crohns but I had seriously bad bowel blockages and constipation so now I also have a permanent ostomy bag. I still hate mine but I deal with it, even though I’ve had it since 2008
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I was diagnosed with Crohn's Disease in 1976 at the age of 21. At that time none of the doctors knew what I had until I was diagnosed at UCLA. There was no medication available to treat this illness, so I started acupuncture at the request of a friend and soon found out that diet was the answer to help with with my stomach problems and diarrhea. After almost 49 years, I've learned to live with it, I completely changed my diet and only stuff if I decide to eat any type of dairy product.
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She looks beautiful!
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You are so much brave, so inspiring!
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Such and inspiration. So many great perspectives, thanks for sharing your journey! Wishing you the absolute best.💓
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I hope Meghan is doing alright living with an Ostomy Bag.
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Bless you
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Thank you for sharing your story. I might have Crohn's but it is not confirmed yet. I do have strange scan findings with enlarged lymph nodes near my ileocaecal valve which lit up in a PET scan I had for unrelated cancer. My ileocaecal valve also lit up indicating some sort of inflammation there. Colon cancer was ruled out but IBD was not. I also have a family history of this disease (my aunt has Crohn's in this exact location). However I also have severe stage 4 DIE endometriosis with bowel involvement. They cannot tell if my symptoms and blood in my stool comes from that or possibly Crohn's. Anyway, due to non-stop heavy bleeding from severe adenomyosis, I have to have a hysterectomy. However, because of the severe endometriosis, my reproductive organs are all stuck to my bowels and a bowel resection and reconstruction will be required, likely resulting in a stoma. Thank you for easing my anxiety about this. I have zero quality of life right now because the only exercise I can do is in the pool (due to disabilities and health issues) and I can't even do that right now. After watching this, I am convinced that a stoma would give me my life back if I end up with one.
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God hears and answers prayers.
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You are so beautiful and strong lady ❤
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☺️❤️🙌🏼❤️😇
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My ex husband died at 64 from complications from chrons
