Anna’s story – Family Matters – Huntington’s Disease Awareness Month 2021
Published 2021-05-11
Anna and her parents, Catriona and David, share their story, explaining how they have navigated the realities of coming to terms with life with Juvenile Huntington’s.
If you are inspired by Anna’s film, please explore the Family Matters campaign website: hdfamilymatters.com/ and help raise awareness for Huntington’s disease.
Please do get in touch with the Scottish Huntington’s Association (SHA) if this film has raised difficult issues for you and you feel you need to speak to somebody or if you want to help raise awareness for Huntington’s in Scotland. The SHA (part of the Huntington’s Disease Alliance UK and Ireland) does amazing work to promote awareness of Huntington’s disease and improve support for families. Find out more here: hdscotland.org/.
All Comments (21)
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I'm 25 and I also have juvenile Huntingtons Disease. I can barely move anymore and I've nearly died a few times from chocking on food and drink. I inherited this from my mum who died in 2018. She was only 44. I miss her so much.
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Anna is blessed with loving caring parents. It is a horrible disease. I hope that a cure is found soon.
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Anna is beautiful and loving. The kind of daughter any parent would want to have. Gorgeous little Ginger, and her personality seems so much like her parents. Sweet, gentle, positive, and content. She has a wonderful family.
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My mum died of this in 95 she was only 58 all we were told was that it was hereditary but to this day neither myself or any of my siblings have been tested or counselling given so we're no further forward than we were nearly 30 years ago shocking really
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Anna is not remarkable BECAUSE she has Huntingdons, Anna is remarkable because of her outlook and character, passion for life and her solution-focused attitude. And though she has this terrible illness, she is not defined by it. Thank you for sharing your story Anna.
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Anna my daughter is 13 and captivated by diamond art. She is so chuffed to hear of your works and making Disney brillant for her. Thank you Anna :) x
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What a dear angel that girl, what a big kind sincere smile, just melted my heart. She will have the best place in heaven of all of us.
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What a lovely, loving family. May God bless you all.
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Hoping you have happiness in your days, Anna
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A happy girl,very brave with wonderful parents to help her.Good luck Anna.
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@ 01:06 That is one of the cutest babies I've ever seen in my whole life! 😍 (Including my own 2.) We must find a cure for this hellish disease
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It's so nice to see she's living her life and enjoying :)
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Beautiful people. I hope all of you have many happy days.
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What wonderful parents Anna has.
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May god be with Anna and god bless her family.
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Bless beautiful Anna and her loving family X
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My uncle cand his two sons had HD. Noone else except one cousins son have had it. It is devastating to watch.
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Anna is a lovely young lady. I wish her and her family all the best. It’s so important to have loving and supporting parents, which she definitely does. Miracles do happen. I hope they either find a cure or better therapies to help stave off the effects of Huntington’s. Much love to Anna and her family 💕
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Anna you are beautiful and you have wonderful parents. You are strong and give me strength too. Thankyou
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Her art projects are lovely.
